Privacy Policy
Last updated: 3 September 2026
Sickle Synced CIC respects your privacy and is committed to protecting your personal information. This Privacy Policy explains how we collect, use and protect your personal information when you use our Payhip store, purchase our digital products or contact us through the store.
1. Who We Are
Sickle Synced CIC is a Community Interest Company working to improve understanding, awareness and support around Sickle Cell and the experiences of people living with the condition.
For privacy and data protection enquiries:
Email: shorna.sicklesynced@gmail.com
Sickle Synced CIC is responsible for how your personal information is used in connection with our Payhip store and the services we provide.
2. Information We Collect
The information we collect depends on how you interact with Sickle Synced CIC.
Purchases
When you purchase a digital product through our Payhip store, we collect your email address and name so that we can process your purchase and provide access to your product.
Payment information is processed securely by Stripe. Sickle Synced CIC does not store your full payment card details.
Contact Enquiries
When you use our Contact Us form, we may collect your:
- Name
- Email address
- Message or enquiry
Mailing List
If you choose to join our mailing list, we collect your email address so that we can send you communications from Sickle Synced CIC.
3. How We Use Your Information
We may use your personal information to:
- Process and fulfil purchases.
- Provide access to digital products.
- Respond to enquiries and provide customer support.
- Communicate with you where you have chosen to receive communications from us.
- Send updates about Sickle Synced CIC, including our work, events, resources, products, opportunities, campaigns and other relevant information.
- Maintain appropriate business, transaction and accounting records.
- Meet legal and regulatory requirements.
- Manage, maintain and improve our online store, resources and services.
Testimonials
If you choose to provide a testimonial, we will only use it publicly with your permission.
We will ask for your consent before publishing your testimonial and will confirm what information you are happy for us to share, such as your first name or other details you choose to provide.
You can withdraw your permission for us to use your testimonial by contacting us at shorna.sicklesynced@gmail.com.
4. Lawful Basis for Using Your Information
We process personal information under the following lawful bases:
- Contract: Where processing is necessary to fulfil a purchase or provide a product or service you have requested.
- Legal obligation: Where we need to process or retain information to comply with a legal requirement.
- Legitimate interests: Where necessary to manage our business, respond to enquiries, maintain our services and improve our work, where this does not unfairly affect your rights.
- Consent: Where you have actively chosen to join our mailing list and receive communications from us.
Where we rely on consent, you can withdraw your consent at any time.
5. Mailing List and Communications
Joining our mailing list is optional and is not required to purchase a product.
At checkout, you may choose to tick the optional mailing-list checkbox. If you choose to subscribe, your email address will be provided to MailerLite, which we use to send communications from Sickle Synced CIC.
These communications may include information about:
- Our work and activities
- Events
- Resources
- Products
- Opportunities
- Campaigns
- Other updates relating to Sickle Synced CIC
You can unsubscribe at any time using the unsubscribe link included in our emails.
6. Services We Use
Payhip
Our online store is hosted and operated through Payhip. Payhip processes information necessary to operate the store, facilitate purchases and provide access to digital products.
Payhip may process personal information in accordance with its own privacy policy.
Stripe
Payments are processed securely through Stripe. Sickle Synced CIC does not store full payment card details.
MailerLite
If you choose to join our mailing list, your email address is provided to MailerLite so that we can send communications from Sickle Synced CIC.
These services may process personal information as part of providing their services.
7. Cookies
Our Payhip store uses cookies and similar technologies that are necessary for the website and online store to function.
Further information about the cookies used on our store is provided in our Cookie Policy.
8. How Long We Keep Your Information
We keep personal information only for as long as reasonably necessary for the purpose for which it was collected.
Some information may need to be retained for longer where necessary to meet legal, accounting or regulatory requirements.
When information is no longer required, we will securely delete or dispose of it where appropriate.
9. Your Data Protection Rights
Depending on the circumstances, you have rights under UK data protection law, including the right to:
- Request access to the personal information we hold about you.
- Ask us to correct inaccurate or incomplete information.
- Request deletion of your information in certain circumstances.
- Ask us to restrict how we use your information in certain circumstances.
- Object to certain uses of your information.
- Withdraw consent where we rely on consent to process your information.
To exercise your rights, please contact us using:
10. Complaints
If you have concerns about how we use your personal information, please contact us first so that we can try to resolve your concern.
You also have the right to complain to the Information Commissioner's Office (ICO) if you believe your personal information has been handled unlawfully.
11. Changes to This Privacy Policy
We may update this Privacy Policy from time to time to reflect changes to our services, how we use personal information or changes in legal requirements.
The latest version will be made available on our website.
12. Contact Us
For questions about this Privacy Policy or how Sickle Synced CIC handles your personal information, please contact:
Sickle Synced CIC