The Anal Fistula Handbook
When my first abscess appeared, I searched for hours and found two things: clinical pages explaining what a fistula is, and forum posts from frightened people with no answers.
What I couldn't find was what I actually needed — what to say to a doctor who isn't listening, which questions change your treatment, what recovery is really like, what to buy, what to eat, how to tell your partner.
I was sent home from A&E with numbing cream while my CRP climbed toward 94. I had a fistulotomy that failed because the tract had never been mapped. It took nearly eight months and four operations before I reached a specialist who properly understood my anatomy.
Most of that was avoidable. Not because my doctors were bad, but because I didn't know what to ask.
This is the guide I couldn't find.
Inside:
- Getting taken seriously — the exact words that got me from "it's a skin infection, take this cream" to emergency surgery, and which test to ask for by name
- Your operative notes, decoded — my real surgical notes line by line in plain English, and why one phrase in mine shaped every decision that followed
- The four questions to ask every surgeon — including the one that would have saved me six months
- Living with a seton — months of it, honestly: the drainage, the clothes, working, travelling, and why it turned out to be the right decision
- Sex, intimacy and your relationship — the chapter almost nobody writes
- What to eat, what to buy, what to skip — ranked by how much difference each actually made
- When it comes back, and when it's Crohn's — why recurrence isn't your fault, and the pattern that should make you ask for an IBD workup
Plus four printable appendices: a doctor appointment checklist, a question script to read out loud, a symptom and drainage tracker, and a recovery supply list.