THE NEW VOICE - A Roadmap for Life After Glossectomy

Life after a glossectomy does not come with an instruction manual.

When my husband Jerzy came home after a glossectomy, we quickly realised how much we would have to figure out for ourselves.

The feeding tube. Communication. Saliva. Swelling. Radiotherapy and chemotherapy. Swallowing. Sleep. Going out. Phone calls. And all the small everyday things nobody really prepares you for.

THE NEW VOICE is the book I wish we had been given when we came home.

It is based on our real experience, what happened to Jerzy, what helped us, what surprised us, and what I learned as his partner and carer.

Inside, I share our experience with:

• the first weeks after surgery

• living with a RIG feeding tube

• preparing for radiotherapy

• chemotherapy and the emergency alert card

• radiotherapy skin reactions and hair changes

• lymphoedema and swelling

• neck and shoulder movement

• saliva and the “tissue marathon”

• swallowing after glossectomy

• sleep apnoea and CPAP

• fatigue and brain fog

• dental problems after treatment

• setting up life at home

• communicating and dealing with the public

• caring for someone while still trying to manage everyday life

• important emergency airway information

This is not a medical textbook.

It is one partner talking to another patient or carer and sharing the things we learned along the way.

Digital product: 37 page PDF e-book

Language: English

Instant download after purchase

Please note: This book shares our personal experience and is not a replacement for advice from your own medical team.