My (Dis)Ability Organizer - the bendy edition
Living with Ehlers-Danlos syndrome often means managing multiple symptoms, specialists, appointments, treatments, medications, and test results—all while dealing with pain, fatigue, and brain fog.
I understand how overwhelming that can feel. My children and I have hypermobile Ehlers-Danlos syndrome, so this organizer was created from personal experience with the realities of managing a complex, lifelong condition.
My (Dis)Ability Organizer: The Bendy Edition is a printable resource designed to help you keep the important details of your health care together in one practical place. It can help you prepare for appointments, track changes over time, and find the information you need without relying on memory alone.
This EDS edition contains more health-related sections than my standard medical journal, along with additional pages created specifically for conditions and concerns commonly associated with Ehlers-Danlos syndrome.
What’s included
Essential information and medical records
✰ Insurance information
✰ Health card information
✰ Health-care professional contact list
✰ Doctor’s appointment records
✰ Hospitalization records
✰ Surgery records
✰ Tests and procedures
✰ Current health overview
✰ Current medications
✰ Previous medication history
✰ Immunizations
✰ Allergies
✰ Medical expenses
✰ Applying for disability benefits
✰ Blank weekly planners
✰ Symptom tracker
Health and wellness
✰ Cardiac health
✰ Dental health
✰ Dermatological health
✰ Eye health
✰ Genetics
✰ Hearing
✰ Mental health
✰ Nutrition and dietary health
✰ Respiratory health
✰ Sensory needs
✰ Urinary health
✰ Weight
✰ Milestones
✰ Other health concerns
Therapies and supports
✰ Occupational therapy
✰ Physiotherapy
✰ Speech therapy and communication
✰ Nutritional support
✰ Splints and braces
EDS-related health concerns
✰ Joint dislocations and subluxations
✰ Scoliosis
✰ Chiari malformation
✰ Mast cell activation syndrome
✰ Dysautonomia
Additional planning and reflection pages
✰ Celebrating the small things
✰ School goals
✰ School contact information
…and more.
Digital download
This is a 90-page digital PDF download. No physical product will be mailed.
The organizer is best used when printed and placed in a binder. You can also print additional copies of individual pages whenever you need them.
Your file will be available to download once payment has been processed.
Questions or file issues?
Because this is a digital product, refunds are not available after purchase. However, if you experience difficulty accessing the file or notice a problem with the download, please contact me and I will do my best to help.