A Living Signal Research Evidence Based Tool for Patients and Providers

If you have pelvic pressure, bladder urgency, rectal pressure, dizziness, tachycardia, nausea, leg shaking, or symptoms that get worse with standing and better when lying down, this handout explains the physiology behind it using peer-reviewed research.

Most patients with EDS, Dysautonomia/POTS, Pelvic Congestion Syndrome (PCS), and MCAS experience a complex loop of venous pooling + autonomic instability that doctors often miss.

This PDF finally connects the dots.

Bring this to your next appointment.

This handout helps clinicians understand why your symptoms:

✔ worsen around your period

✔ flare when you stand too long

✔ calm when you lie flat

✔ spike with heat, stress, or dehydration

✔ feel neurologic (bladder urgency, rectal pressure, sitting pain)

✔ cause tachycardia or dizziness even when vitals look “normal”

Even when pelvic exams, GI testing, ultrasounds, or labs come back normal, your physiology tells a different story.

This PDF gives you clear, clinical language to show your provider what’s actually happening.

Inside This Multi-Page PDF

• The Root Cause Behind Pelvic Pressure & Pooling

EDS → weak collagen → dilated veins → valve failure → blood pooling.

• Why Standing Makes Everything Worse

How reduced preload triggers sympathetic overdrive (tachycardia, dizziness, heat intolerance).

• The Pelvic-Nerve Connection

Why pelvic floor spasm, bladder urgency, and rectal pressure happen during venous distention.

• MCAS + Pooling Loop

Why burning pain, flushing, nausea, and internal shaking worsen during pelvic congestion.

• Why Symptoms Flare Before Your Period

Hormone shifts → more pelvic blood volume → worse pooling & dysautonomia.

• Triggers That Make PCS + Dysautonomia Spike

Standing, heat, bending, long drives, meals, stress, hormonal timing.

• Imaging & Testing That Actually Shows the Problem

Upright Doppler, MR/CT venography, reflux mapping, and compression related testing.

• What Clinicians Often Mislabel

Why this is NOT pelvic floor dysfunction, IBS, anxiety, or primary POTS, even if you've been told that.

• Clear, Evidence-Backed Language You Can Give to Your Doctor

Every section includes peer-reviewed references.

References & Disclaimer

Includes 17+ scientific citations + full clinical disclaimer for use in medical appointments.

Note:

There is a separate patient friendly document that includes the full Pelvic Congestion + Dysautonomia MAP for visual learning and personal reference as displayed on Tiktok video.