When and Where to Refer: Specialists for EDS, Dysautonomia, MCAS, and Related Conditions

Printable Doctor Handout: When and Where to Refer: Specialists for EDS, Dysautonomia, MCAS & Related Conditions

A Living Signal Research Evidence Based Tool for Patients and Providers

If you’ve ever been told “there’s no point in a diagnosis” or “there’s no specialist for that,” this handout changes that conversation.

This professional, evidence based reference was designed to help both patients and clinicians navigate the complex overlap of Ehlers Danlos Syndrome (EDS), Dysautonomia/POTS, Mast Cell Activation Syndrome (MCAS), Gastroparesis, SMA & Nutcracker Syndrome, Pelvic Prolapse, and other connective tissue related conditions.

It clarifies which specialists are appropriate for evaluation, what red flags require referral, and how early diagnosis can prevent complications and improve care coordination.

Inside You’ll Find

• Clear, table based specialist guide

Concise breakdown showing which specialties manage each condition and why those referrals matter.

• Referral “red flag” checklist

A quick glance list to identify when specialist evaluation becomes medically indicated.

• Peer-reviewed citations

Each section is grounded in research from genetics, cardiology, immunology, gastroenterology, and vascular medicine journals.

• Professional language, patient friendly format

Written in a way that’s credible for clinicians yet easy for patients to understand and share.

Use This Guide To:

– Bring clarity to your appointments and documentation.

– Support legitimate referral requests with evidence.

– Educate care teams unfamiliar with systemic connective-tissue overlap.

– Strengthen your chart with research-backed legitimacy.

Who It’s For

• Patients and caregivers advocating for appropriate referrals.
• Clinicians looking for quick, reliable reference points for complex conditions.
• Anyone managing EDS, POTS, MCAS, or vascular compression syndromes who’s tired of being dismissed or misdirected.

Format

• 4 page downloadable PDF (8.5x11”)
• Includes full citations, red flag checklist, and quick reference tables.
• Ideal for print or digital use in appointments and clinical discussions.

Part of the Living Signal Advocacy Library. Evidence based handouts that help patients walk into medical appointments with clarity, confidence, and science on their side.